Still waiting on word from the doctor. Otherwise, Jenna is almost completely healed up from the bone marrow biopsy and aspiration. Just a small crusty scab remains.
In other news. Jenna has started intensive outpatient therapy this week. She is doing great as usual. She is working on all the usual stuff, some speech, oral tone, blowing whistles, and her bite stick thing. And she is walking more and doing e-stim on the leg and arm. She requested to walk on the treadmill, and walked for 4 min. WoW!!! She is also working on getting some hand function back.
We have contacted Medicaid to get some assistance with her care. It is amazing how much more intense her care is when you come home! It is never ending and we will need help for the long haul. She doesn't want to be left alone, like in the living room while I am in the kitchen. And she still need a lot of help even with simple things like scooting up a chair. But she s doing well in so many way I can't even believe. She will sometime just appear upstairs, like if I run up to brush my teeth. And today, I worked on helping her learn to get down by herself. But She is still too scared to do that. She can't get all the way down to sitting without help right now. And I have her scooching down the stairs.
I also ordered her a new wheelchair. I do not care if it gets reimbursed. Teh wheelchair man came out tonight and added her seatbelt. When he was doing that, I asked about extenders for the brake because EVERYONE has pinched their fingers between the brake lever and the armrest. He said the brake lever was too big for his extenders. He then proceeded to try out the brake lever, and pinched his finger so hard, it started BLEEDING. New yellow smiley face wheel chair for Jenna!! It does not appear to have the same design flaw this one does. We shall see, ships in 2 days!!
I was super able to get Jenna ready for bed and all the stuff that goes with it. But is has been more challenging to have both of them. And, med administration has been a little more poorly organized since adding a 3rd med time in the middle of the day. -2 for mom. Oh well. No harm no foul and at least it is not the seizure meds.
Still in shock at the IMMENSE volume of cards that appeared at our house Sunday night in particular. I think there are about 1000. I am not even kidding. They cover the whole floor. The kids have had such a great time sorting them and organizing them. We talked about Rachel's challenge, http://www.rachelschallenge.org/ Jackie's school participates in this and she brought it up. I can't believe so many people we able to do one small act for my children and it all added up to so much. I hope I can do 1/10 of the kindness everyone has shown us. Honestly, I hadn't even thought of Valentines for the girls. I got Mark a hairball card from the cats, but really that's it. Really. So, just in case anyone ever reads this, Thank you from the bottom of my heart. Ha, pardon the pun. Valentine's Day, heart....
Ooo, how could I forget... the news!! Dallas Morning news had a blip about her. Just a little update and photo of her and her bud Rebecca. The news also showed up. http://video.dallas.cbslocal.com/global/video/popup/pop_playerLaunch.asp?vt1=v&clipFormat=flv&clipId
I guess someone there is friends on Jenna's Facebook page. It is so great. I am super stoked 2/3 of my pets made it on the news!! And Beuford meowed on cue. Sweet boy.
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